$0 Scotland CSP & Additional Support Meeting Prep Checklist

School Support for Sensory Processing, Down Syndrome and Cerebral Palsy in Scotland

Three conditions, three very different presentations — but the same Scottish legal framework applies to all of them. Whether your child has sensory processing difficulties, Down syndrome, or cerebral palsy, their right to additional support at school in Scotland doesn't depend on the diagnosis. It depends on the barrier to learning.

Understanding how the law applies to each of these conditions specifically helps you identify what to ask for and where to push.

The needs-led principle and what it means for these conditions

Scotland's Education (Additional Support for Learning) (Scotland) Act 2004 is deliberately non-diagnostic. A child has an additional support need if they cannot benefit from school education without additional support — whatever the reason. This means a child with sensory processing difficulties, Down syndrome, or cerebral palsy does not need to wait for a specific diagnostic label to access support. The functional barriers they face in the classroom are sufficient.

This principle matters particularly for sensory processing, where formal diagnostic frameworks can be inconsistent. A child who cannot concentrate, regulate, or learn effectively in a standard classroom environment due to sensory sensitivities has an additional support need regardless of whether occupational therapy has formally labelled the difficulty.

Sensory processing difficulties

Sensory processing difficulties affect how the brain receives and responds to sensory information — sounds, textures, light, movement, touch. In a classroom, this can mean overwhelming responses to background noise, difficulty sitting still on certain surfaces, extreme distress from unexpected touch, or the inverse — sensory-seeking behaviour that disrupts learning.

What the school should provide: Classrooms have inherent sensory challenges, and schools have a duty to make reasonable adjustments for children whose sensory needs create barriers to learning. This might include preferential seating away from high-traffic areas, access to a sensory break space, noise-cancelling ear protection during certain activities, flexible seating options, or a structured sensory diet recommended by an occupational therapist.

Who to involve: Occupational therapists (OT) with expertise in sensory processing are the primary professionals for assessing sensory needs and designing interventions. In Scotland, OT services in schools are typically provided through the NHS and coordinated with the education authority. If your child has identified sensory processing difficulties, a referral to community OT should be made — and if the school hasn't initiated this, you can request it directly via your GP or ask the school to make the referral.

Getting formal support: If sensory difficulties are significantly affecting your child's learning across multiple areas and OT input is ongoing, this may meet the multi-agency criterion for a Co-ordinated Support Plan (CSP). The CSP requires complex needs, a duration of more than one year, and significant support from education and at least one other agency. Chronic sensory processing difficulties requiring ongoing OT involvement alongside educational support can meet this threshold.

CALL Scotland (Communication, Access, Literacy and Learning) provides resources and assessment for children with complex communication and sensory needs. The Scottish Sensory Centre at the University of Edinburgh is a specialist resource for visual and hearing sensory difficulties.

Down syndrome

Down syndrome (trisomy 21) is a genetic condition that affects learning, development, and health in ways that vary considerably between individuals. Children with Down syndrome typically have an intellectual disability, but the degree varies. They may also have associated conditions including hearing loss, visual impairment, speech and language difficulties, and heart conditions — all of which can affect educational access.

What the school should provide: Children with Down syndrome typically need additional learning support at school, including differentiated curriculum, adapted teaching approaches, and often direct support from a Pupil Support Assistant (PSA). Speech and language therapy is commonly needed — research consistently shows that children with Down syndrome have a particular profile of strengths and weaknesses in language development, with comprehension typically stronger than verbal expression.

The multi-agency reality: Down syndrome frequently involves NHS involvement across multiple domains — cardiology, audiology, ophthalmology, community paediatrics, speech and language therapy. This multi-agency involvement, if it is "significant" and connected to educational objectives, is a strong basis for a CSP assessment. Many families of children with Down syndrome in Scotland should be receiving a CSP but aren't, because the number of CSPs nationally has collapsed to historic lows. If your child with Down syndrome has significant educational needs and is receiving support from both education and NHS services, request a formal CSP assessment in writing.

Down Syndrome Scotland provides advice and resources specifically for families navigating the education system. Their education support work can help families understand what provision is appropriate and what to ask for.

Transition planning: Transition from primary to secondary school and from school to adult life are periods of particular risk for children with Down syndrome. The education authority has statutory duties to begin transition planning no later than 12 months before any significant move. If your child holds a CSP, there are additional statutory requirements around transition. Don't leave this to the last minute — begin asking about transition planning at the annual review well before the transition year.

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Cerebral palsy

Cerebral palsy (CP) is a group of permanent conditions affecting movement and coordination, caused by damage to the developing brain. The presentation varies enormously — from mild motor difficulties to complex physical, communication, and cognitive needs. Some children with CP have typical or near-typical intellectual ability; others have significant learning disabilities. Some require full-time physical support; others need only targeted adjustments.

What the school should provide: Physical access is an immediate consideration — schools have duties under the Equality Act 2010 to make reasonable adjustments for disabled pupils. For children with CP, this can include physical adaptations to the environment, appropriate seating and positioning equipment, alternative access to the curriculum (adapted writing tools, assistive technology, switch access), and physiotherapy input during the school day.

Physiotherapy and occupational therapy are both commonly involved for children with CP, and these are services provided by NHS Scotland. If your child needs physiotherapy or OT input that is directly connected to their educational objectives — for example, positioning that enables writing, or fine motor exercises linked to curriculum tasks — this should be coordinated through a Child's Plan or CSP, not left as a separate NHS thread.

CALL Scotland has particular expertise in augmentative and alternative communication (AAC) and assistive technology, which is relevant for children with CP who have communication or fine motor difficulties affecting their access to the curriculum.

Assistive technology: Children with CP who cannot write by hand, or for whom handwriting is significantly harder than their peers, are entitled to alternative recording methods. This is not a discretionary favour — it is a reasonable adjustment. Schools should be using assistive technology, not as a last resort after years of handwriting practice, but from the point where the motor difficulty is identified as creating a barrier to recording.

The CSP threshold for CP: Many children with cerebral palsy will meet the CSP criteria. Complex needs, multi-year duration, and involvement from both education and NHS services (physiotherapy, OT, speech therapy) are common. If your child has CP with significant educational impact and is receiving services from more than one agency, ask explicitly about CSP eligibility.

Using condition-specific organisations alongside the education system

Condition-specific charities can provide information, advocacy, and expert input that the school system won't necessarily volunteer:

  • Down Syndrome Scotland — education support resources and helpline
  • Capability Scotland — support for disabled people including children with cerebral palsy
  • CALL Scotland — assistive technology and communication support
  • Scottish Sensory Centre — specialist resources for sensory difficulties

Expert reports from these organisations, or from private OT and physiotherapy assessors, can be used as evidence in CSP applications, staged intervention reviews, and if necessary, ASN Tribunal proceedings.

The Scotland CSP & Additional Support Blueprint at /uk/scotland/iep-guide/ covers how to build an evidence file, how to request formal assessments, and how to escalate when the school's provision isn't matching your child's identified needs — regardless of the specific diagnosis.

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